RaDiOrg is the Belgian umbrella organisation for people with rare diseases. At the end of 2024, the organisation had 90 member associations: 22 bilingual, 40 Dutch-speaking, and 28 French-speaking. In addition, there are more than 900 individual members with a disease for which no association exists. RaDiOrg is the national alliance of EURORDIS, the European umbrella organisation for people with rare diseases.
RaDiOrg promotes the well-being of people with rare diseases by:
1- Representing their common interests.
2- Guiding them through the complex landscape of rare diseases.
RaDiOrg strives for a world where all patients with rare diseases receive a quick and accurate diagnosis, optimal, tailored, comprehensive care, and are an integral part of society.