Fragile X International - FraXI -  is an International Non-Profit Organization (INPO), founded by a network of 17 country family organisations, with a growing membership. FraXI is a conduit for countries to work together and an official entity for sharing of international knowledge and expertise on Fragile X Syndrome and Fragile X Premutation Associated Conditions, a rare disease but the first genetic hereditary cause of intellectual disability. FraXI aims to drive research, encourage international collaborations and contribute with a unified voice of lived experience from its international network.